Saturday, July 11, 2009

He's still here!

Mommas eyes never left the Gray man last night. She didn't get a wink of sleep, but he sure did. He seems to do so much better at night, not sure if it's the activity of the day time or what. We've even hit another milestone. He is tolerating 15 ml of feeding! 20 ml is his goal, but we never thought it would get that far. No residuals whatsoever for the past 2 feedings. I just know that he will get so much stronger if he can take more food.

I had to call Pediatric Specialties this morning because our portable oxygen tank is almost empty. We still have the machine that makes oxygen for him, but it only goes to 2 liters a minute. When he was doing badly we had to bump him up to 3 liters on his portable tank. It really only last a couple of hours at that setting. Hopefully they can bring us a new tank today, but the office is closed. Someone is supposed to be calling me back. We won't think about needing more oxygen right now though.

Grayson says Good Morning and thanks for the prayers. Another monkey is just a few hours away.

Friday, July 10, 2009

Little Man is tired...

The past few hours with Gray man has been a real roller coaster. He almost went to be with Kinsey. His breathing got pretty labored and his heart rate dropped low enough that it wouldn't register on his monitor. His mom and I held him tight, told him we loved him and that it was ok for him to go see Kinsey. All the family came in and gave him kisses goodbye. Lots of tears were shed. Everyone left the three of us in our bedroom and we just laid together.

It seems Grayson really wants to get another monkey though. After a few hours of cuddling him and praying over him he is doing a little better. His breathing is not as labored and his heart rate has been stable for an hour or so. He does have some fever; 101.2. Some of the blankets came off and Gray got to show off his pipes and his sexy legs. I told his Aunt Wanda the only difference in his chicken legs and mine is hair!

It's about bed time, but we won't be getting much sleep. Please pray for the little man. Hopefully there will be good news in the morning and another monkey picture at 1208.

The support has been amazing. Thanks to everyone.

I want to take a minute to thank some folks by name and others we don't even know. I will apologize now for messing up some of the names, but you know who you are. We have been getting daily visits from our special hospice nurses since the Gray man made it home. It's fairly easy to remember their names because they are Becky and Becky. They have been great to us. Anything we have needed and some things we didn't even really know we might need, they take care of it. One mention of maybe having a sat monitor at the house and later that evening we had it. As concerned as everyone is for little man, the Becky's are also concerned about us and make sure we are OK as well. It's funny that they are fellow nurses, but in a completely different specialty. Their world is so different than the work world I've always known. They are special people and see things everyday that would emotionally cripple most.

Brad, a chaplain with hospice came out and met with us yesterday. It is such a small world... he knows some of the same folks we do. He prayed with us and had such kind words.

We also got a visit today from Dr. Wyatt and Dr Robertson from Hospice as well. They assure us that everyone is a phone call away and to let them know if there is anything we or Grayson needs. Jackie, a social worker with hospice, also came out to check on Kristi and I as well. They are such a great support system. All of them are a phone call away.

That brings me to thanking Kim, Leslie, and Adam. They came to visit today on their way home. I grew up with them and they are a huge part of my life. Kim and Adam's mom, Mona, died last year 4 weeks to the day of Kinsey's death. She never got to hold Kinsey and we sure hate that she's not here to hold Grayson. I can tell you she would be sitting on my couch holding him while telling me it only takes 13 seconds to heat up my chocolate chip pie in the microwave. She was a wonderful mother to me as well during my life and I wish she were still here with us. She is rocking Kinsey in heaven waiting on the Gray man to fill her other arm. We miss you Mona!

A huge thanks to all of Kristi's family who have spent countless hours making phone calls, cooking food, running people around here and there, and getting us everything we need. We are glad to hear that Peyton made it back safe to Panama City. She has been a rock for Kristi and we can't thank her enough. Thanks as well to my Dad and Linda for all of their support, time, and everything else they have helped us with. They have helped in ways that most will never know. Without such a great support system we would be destined for failure in a quick way. Thanks as well to all the people commenting on the blog posts. I cry everytime I read the posts to Kristi while she is feeding Grayson. I even start crying when I read "You don't know me but". There are so many people who don't even know us or our family who post. Every post means the world to us. Thank you for the kind words of encouragement.

We would also like to thank Dr. Paul Wendel for everything he has done for us. He always has the right words for every situation. Grayson was his first baptism; congratulations Dr Wendel. He is a blessing to all his patients, we think the world of him. His nurse practitioner Stephanie as well, we are glad to call her our friend. We've called and texted her many times for help when we didn't know who else to call. The neonatologist Whit Hall is an amazing man. We've had to call his cell phone a couple times to ask questions about Grayson and he is so kind. He told Kristi to call him any time; day or night. Heather... you look amazing in the slideshow. I'm glad we talked you into getting in the pictures. Heather was Kristi's nurse during delivery... she kept our room free of prying eyes and even residents. She does amazing work and I'm glad Kristi can call her a friend. A big thanks to Treasure as well. She was our nurse during admission. Everyone in the Angels Call Center that work with Kristi and to those from the Heart who thought of us and brought food. And to everyone else we forgot to mention... you will not be forgotten.

We continue to hope that the Gray Man will touch as many people as possible and help in a way we don't quite know yet. He has had so many visitors from family to friends to nurses and even strangers. There is something to learn from all of them and hopefully Grayson touches them all. He's quite the superstar these days. I told Kim, Leslie and the Beckys that Grayson is possibly the most photographed child ever. We love you Grayson and can't wait to give you another monkey!

Grayson's 3rd day Birthday

Grayson celebrated his 3rd day with us today at 1208. His Great Grandparents from Brookhaven Mississippi made it here to see him. Thank you Uncle Mark, Aunt Wanda, and Peyton for all the help. As smoothly as some things have gone there's been a few bumps in the road from airports all the way down to broken down vehicles! Mark and Wanda have spent more time on the road than most truck drivers here lately shuttling folks around so Kristi and I can spend more time with the Gray man.

Another special thanks goes to Ashley and Jennifer. They made a "midnight monkey run" to get Grayson's presents for the next couple parties. We were running low on monkeys. I hope we have to add on another room to house to keep all the monkeys! Enjoy the pictures.



Gray man may look a little upset in his pictures. He wanted a piece of chocolate cake, but we told him it wouldn't go down his tube. Happy 3 day BDay Little Man!

Morning update

Grayson had a pretty good night. Kristen from Pediatric Specialties brought us a sat monitor to hook him to so we kept him on the monitor all night. Right when we went to bed his sats were hanging around 78-82%. After he ate his sats started easing up into the low 90's. A few times last night he alarmed with a heart rate as low as 70... we roused him a little and he came back up to the 150's. I think he was probably pooping or something. Without the sat monitor we never would have known that he was doing it.
He is still in his little bed that stays between Kristi and I at night. Since he is sleeping so well Krisit is just sitting with him for a while. Gray man's birthday party will be in a few hours at 1208; I will post up a picture shortly after he gets his new Monkey.