Saturday, July 11, 2009

He's still here!

Mommas eyes never left the Gray man last night. She didn't get a wink of sleep, but he sure did. He seems to do so much better at night, not sure if it's the activity of the day time or what. We've even hit another milestone. He is tolerating 15 ml of feeding! 20 ml is his goal, but we never thought it would get that far. No residuals whatsoever for the past 2 feedings. I just know that he will get so much stronger if he can take more food.

I had to call Pediatric Specialties this morning because our portable oxygen tank is almost empty. We still have the machine that makes oxygen for him, but it only goes to 2 liters a minute. When he was doing badly we had to bump him up to 3 liters on his portable tank. It really only last a couple of hours at that setting. Hopefully they can bring us a new tank today, but the office is closed. Someone is supposed to be calling me back. We won't think about needing more oxygen right now though.

Grayson says Good Morning and thanks for the prayers. Another monkey is just a few hours away.

25 comments:

Anonymous said...

As I woke throughout the night, I lifted you all up to the Lord! I ANSI thankful for the good news this morning! Looking forward to seeing that monkey today!

Lisa in NC

Anonymous said...

Last comment should say "I am so thankful".

Karen said...

Praise God - what else can you say!Will keep on praying for peace for you all. Hopefully the oxygen tank will be replaced quickly so you don't have to stress over that. Anything to make that sweet little fella more comfortable.

Still praying in Alabama

Amy said...

I will keep praying. I hope the tank gets replaced quickly. I'm looking forward to new monkey pictures at 1208.

Amy in MN

jess said...

Prayers to your beautiful family.

Heather said...

Praying that he continues to receive many more monkeys. Also praying for strength for you guys. You must be exhausted!

Lorie said...

A friend shared this blog with me yesterday and your story left me in tears. I am praying for strength for both of you and for little Grayson.

Lorie in SC

Anonymous said...

Im so happy to read this update! I hope to see another monkey picture in a few hours from now!

Lots of love to your family from ours

Your well wisher in India!

Anonymous said...

I didn't want to get up this morning and my husband said "don't you want to check FB. I immediately thought of Grayson and jumped out of bed. So glad he had a good night. I'll be waiting for 12:08. I'm just an old lady from NC who believes you are holding someone very special.

Anonymous said...

Praying for your family and rejoicing that you are still holding sweet Grayson this morning.
Sarah in Mississippi

Anonymous said...

Godbless you sweet Grayson!!!
We love you! Keep eating big boy!

Love from Calfifornia,
Nichole

Sharon said...

I'm another commenter that will start out by saying "you don't know us..." I found your blog through Kelly's blog. (I'm telling you - that girl should have a freeway named after her - she directs so MANY people to wonderful blogs - like yours.)
All that to say - our family has added your family to our prayers. Grayson's name has also been added to our church's prayer roll. Please whisper to Grayson (aka "Monkey Man"?) :) that he has touched many folks here in Florida - prayers and hugs and love know no state borders. God bless each of you!!!

Barbara said...

I've kept up with your family through your Aunt Judy and I am praying for you all! With love, Barbara Hickman

TheSooner7 said...

What an awesome Lord we serve :)

April Swarthout said...

What a Blessing what a glorious day! PRAYING!!

april

Huntsville
Arkansas

Susan said...

So thankful for God's protection & care!! Grateful too to have been able to hold Grayson & be with ya'll for a little while...a great blessing & gift for me that I will always treasure! Will keep praying...love ya'll!!

Susan (aka Aunt Su)

NDBurke said...

What wonderful words to see... "He's still here!" Thank you God. You are all on my mind... thoughts and prayers.

natalie said...

Thanks be to God! Happy 4 day Birthday, precious miracle!

I wonder if your hospice helpers can pull some strings to get you that extra oxygen tank?

Carrie Gray said...

HAPPY 4th day Gray Man!For some reason, last night I knew your Mommy wouldn't take her eyes off of you. But if I were to guess, Grayson, she hasn't slept sicne the moment you arrived. Or daddy for that matter!

I'm so proud you are tolerating your feeds better! Before you know it you'll be at your goal!

Love,
Carrie

Anonymous said...

You don't know me, my name is Naomi. I just want you to know that I'm praying for you and little Grayson... I am so glad that he's still with you today. I know you treasure each moment with him. I'm praying for strength for you all! God be with you.

Bre said...

I have been reading your posts this morning, A friend sent me an email and told me to read these...I cannot believe what all you have encountered....I pray that little Grayson had another b-day today, I just happened to look at my watch to see what time it was, and it was exactly 1208, it made me smile and cry at the same time...I hope I got to celebrate a b-day with him too. You are in my heart and prayers always, I'm sorry for your pain. May God wrap his arms and love around you tightly.....always ~Bre

Bre said...

I have been reading your posts this morning, A friend sent me an email and told me to read these...I cannot believe what all you have encountered....I pray that little Grayson had another b-day today, I just happened to look at my watch to see what time it was, and it was exactly 1208, it made me smile and cry at the same time...I hope I got to celebrate a b-day with him too. You are in my heart and prayers always, I'm sorry for your pain. May God wrap his arms and love around you tightly.....always ~Bre

KK said...

Praying for your family without ceasing. Blessings to all of you today and always. Cling to HIM for peace of mind, strength and courage.
Praying...
Kaye
Matthew 21:22
Psalm 46:10
Isaiah 41:10
Psalm 18:2

AnnMarie & Nick said...

So glad to hear your little man is doing better this morning. I hope his tired Mama gets a little rest herself:) Thinking and praying for your family.

Anonymous said...

Found your blog through a friend. Praying for your sweet baby!

Huntsville, Alabama